References (Part VI)

1. The History - Strange Beginnings - Clusterbusters - Historically, many cultures all over the world treated headaches with naturally occurring indole-rin…

2. Psychedelic Outlaws: Cluster Headaches, Citizen Science, and the Story of ClusterBusters - Listen to this podcast about cluster headaches, psychedelics, and ClusterBusters, with Joanna Kempne…

3. Bob Wold - AHDA

4. Featured Partner: Clusterbusters | American Migraine Foundation - Eileen Brewer and Andrew Cleminshaw of Clusterbusters discuss how their group helps speak out for th…

5. Clusterbusters, Inc. - Bob Wold founded Clusterbusters in 2002 with the goals of advancing research into cluster headache a…

6. Dropping acid may help headaches - Nature - the world’s best science and medicine on your desktop

7. Clusterbusters took treating cluster headache into their own hands - Psychedelic Outlaws documents the story of a patient group who experimented their way to an effectiv…

8. About OUCH(uk) | OUCH(UK) - The Cluster Headache Charity - OUCH (UK) was officially launched on Saturday June 9th 2001 and became a registered charity on May 8…

9. History of OUCH(UK) - Our patron - and chairman - Professor Peter Goadsby credits the NHS with the foundation of OUCH (UK)…

10. Top 10 charities - prd-ds-register-of-charities.charitycommission.gov.uk - Charity details for OUCH (UK) - Charity 1091919

11. Vitamin D3 Therapie – Ein Regimen für …

12. Real-life treatment of cluster headache in a tertiary headache center – results from the Danish Cluster Headache Survey - Anja Sofie Petersen, Nunu Lund, Rigmor Højland Jensen, Mads Barloese, 2021 - Background Pharmacological treatment of cluster headache constitutes the core of clinical management…

13. Indoleamine Hallucinogens in Cluster Headache - by EAD Schindler · 2015 · Cited by 151 — The Clusterbusters.org medication use survey sought to char…

14. A Quick Look at Some of Clusterbusters’ Historical Landmarks - A Quick Look at Some of Clusterbusters’ Historical Landmarks 1998-2002 Our community was built on a …

15. Survey Analysis of the Use, Effectiveness, and Patient-Reported Tolerability of Inhaled Oxygen Compared With Injectable Sumatriptan for the Acute Treatment of Cluster Headache - PubMed - Therapeutic response to inhaled oxygen at sufficiently high flow rates (>10 L/min) had comparable ef…

16. High-Flow Oxygen Therapy as Effective as Sumatriptan for Cluster Headaches - The effectiveness, tolerability, and use of inhaled oxygen compared with injectable sumatriptan was …

17. “You will eat shoe polish if you think it would help”-Familiar and lesser-known themes identified from mixed-methods analysis of a cluster headache survey - PubMed - This mixed-methods analysis identified challenges endured by cluster headache patients, as well as a…

18. Past Research - More than 3,000 people participated in the survey and results were published in the journal Headache…

19. Vitamin D3 Anti-Inflammatory Regimen for Cluster Headache - Created by Pete Batcheller, a retired Navy Fighter Pilot and chronic cluster headache sufferer, . Pr…

20. D3 Vitamin Therapy and Loading details - Explore D3 vitamin therapy and loading details. Using vitamin D3 has been proven to significantly re…

21. A Survey of Cluster Headache (CH) Sufferers Using Vitamin D3 as a CH Preventative (P1.256) | Neurology - OBJECTIVE: To present survey results of 110 CH sufferers (CH’ers) using a daily anti-inflammatory re…

22. The Vitamin D Role in Preventing Primary Headache in Adult and … - Headache is among the main neurological disorders with a great impact on both adults and children. T…

23. High Dose Vitamin D Plus Multivitamin in the Prevention of Cluster Headache

24. A randomized, double-blinded, placebo-controlled, parallel trial of … - D3-Vitamin was superior to placebo in reducing migraine days in migraine patients. Larger studies ar…

25. Vitamin D3 might improve headache characteristics and protect … - Based on the results of this study, we found that 2000 IU (50 μg)/day vitamin D3 supplementation for…

26. Response of cluster headache to psilocybin and LSD - PubMed - NIH - The authors interviewed 53 cluster headache patients who had used psilocybin or lysergic acid diethy…

27. [PDF] Response of cluster headache to psilocybin and LSD | Semantic Scholar - The authors interviewed 53 cluster headache patients who had used psilocybin or lysergic acid diethy…

28. Table 1. - Amid a lack of effective chronic pain treatments, psychedelics have gained attention as a potential …

29. Psilocybin and Cluster Headaches: Breaking the ‘Suicide … - They call them suicide headaches — 10 attacks per day, each rated 10/10 pain, lasting up to 3 hours…

30. psilocybin for the treatment of cluster headache, case report - Results of the Clusterbusters Medication Use Survey. J Psychoactive Drugs. 2015 Nov- Dec;47(5):372-8…

31. Promising Signs for Psychedelic Use in Cluster Headache - A small study finds that low-dose psilocybin was safe and had a moderate effect size, though results…

32. Emmanuelle A. D. Schindler - The Consciousness Library - Research by Emmanuelle A. D. Schindler: 18 papers on The Consciousness Library, with citations, co-a…

33. Psilocybin pulse regimen reduces cluster headache attack … - NCT02981173.

34. Emmanuelle Schindler, MD, PhD - Yale Medicine - Emmanuelle Schindler, MD, PhD, is a neurologist focused on the management of headache disorders, wit…

35. Psilocybin pulse regimen reduces cluster headache attack …

36. Headache Horizons: The Study and Use of Psychedelics in Clus - None

37. The non-hallucinogen 2-bromo-lysergic acid diethylamide as preventative treatment for cluster headache: An open, non-randomized case series - Matthias Karst, John H Halpern, Michael Bernateck, Torsten Passie, 2010

38. BOL-148 - Wikipedia

39. Non-hallucinogenic LSD Derivative for Treating Cluster Headache - Ascenion Takes an Equity Position in Entheogen

40. Ceruvia Raises $8 Million to Complete Integrated Phase 1/2 Trial of …

41. LSD Analog Without the Trip: A New Hope for ‘Suicide Headache’ Sufferers - BriefGlance.com - Ceruvia Lifesciences secures $8M for a non-hallucinogenic LSD analog to treat cluster headaches, off…

42. Regulation of MDMA and Psilocybine | Office of Drug Control (ODC) - Overview of Australian regulations for MDMA and psilocybin, including authorised prescribing, import…

43. The Australia story: Current status and future challenges … - PubMed - The past decade has seen a huge increase in clinical research with psychedelic drugs and 3,4-methyle…

44. Hope for cluster headache community as psilocybin trial funded - One of the world’s first clinical trials into the potential for psychedelic compound psilocybin to p…

45. Cluster Headache Triggers and Treatment Hacks for Patients - 2: Red Bull, 5-Hour Energy, and other drinks that contain caffeine and taurine have an uncanny abili…

46. Using Energy Drinks - The Cluster Headache Support Group - Many clusterheadache patients have heard that drinking energy drinks can abort an attack just about …

47. Exercise as an abortive treatment for cluster headaches - PMC - This study aimed to evaluate the potential of exercise as an abortive treatment for patients with cl…

48. Exercise as an abortive treatment for cluster headaches: Insights from a large patient registry | Semantic Scholar - While evidence is limited, exercise may help alleviate headaches and could be considered an adjuncti…

49. ORIGINAL ARTICLE / ARTICLE ORIGINAL

50. Intense exercise at onset helps abort my cluster attacks, anyone else? - Intense exercise at onset helps abort my cluster attacks, anyone else?

51. Exercise as a trigger? - Exercise as a trigger?

52. Workout during a cluster - Workout during a cluster

53. Aborting shadows - Aborting shadows

54. Cluster Headache: Epidemiology, Pathophysiology, Clinical … - by DYT Wei · 2018 · Cited by 171 — The prognosis of cluster headache remains difficult to predict. P…

55. Cluster headache: Clinical features and management - AbstractCluster headache is a primary headache disorder characterized by attacks of severe-to-very s…

56. Response of cluster headache to kudzu - Anecdotal evidence suggests that a component in OTC products labeled as kudzu may prove useful in ma…

57. A double-blind placebo-controlled trial of intranasal capsaicin for … - It has been suggested that treatment of cluster headache (CH) patients with topical capsaicin may de…

58. Management of Cluster Headache - Cluster headache, an excruciating, unilateral headache usually accompanied by conjunctival injection…

59. Preventative effect of repeated nasal applications of capsaicin in … - Preliminary studies have shown that repeated nasal applications of capsaicin prevented the occurrenc…

60. Pharmacotherapy Options for the Management of Cluster Headache - Jared L. Pomeroy, Michael J. Marmura, 2013 - Cluster headache is a primary headache syndrome characterized by attacks of severe unilateral headac…

61. “Capsaicin-sensitive” sensory neurons in cluster headache - PubMed - Capsaicin, when repeatedly applied to the nasal mucosa of cluster headache patients, has been shown …

62. OHP-053 Intranasal Applications of Capsaicin to Treat Cluster Headache, a Case Report - Background Cluster headaches are one of the most severe types of head pain. Intranasal medicines for…

63. Cluster headache - PMC - The revised International Headache Society (IHS) criteria for cluster headache are: attacks of sever…

64. [PDF] European Academy of Neurology guidelines on the treatment of …

65. N1-Headache - Apps on Google Play - Track and understand your migraine and headaches. Take back control.

66. Cluster Headache Advocacy: The Role and Impact of Patient-Led Organizations - Practical Neurology, 8 August 2026 - traces OUCH(UK) and Clusterbusters to the same clusterheadaches.com message board origin.

67. Clusterkopfschmerzen erforschen (CLUE) - Germany’s national citizen-science platform mitforschen.org, project page for the CH patient self-research project led by Jörg Scheidt, Hochschule Hof.

68. Kopfschmerz-Radar project status PDF, September 2018 - Reports 113 active CH participants and 2,960 logged attacks.

69. Effectiveness of medication in cluster headache - Drescher, Khouri, Amann, Gaul, Kropp, Siebenhaar, Scheidt - BMC Neurology 21:174 (2021), open access, peer-reviewed output of the CLUE patient-logged dataset.

70. CSG e.V. — Aktuelle Studien und Umfragen and Transparenz über Förderungen - German patient body’s survey-recruitment page and funding transparency disclosure.

71. Cluster Headache Scales validation study, DRKS00016502 - Klan et al., Cephalalgia 2020, n=302, recruited via CSG e.V.

72. Vägen till Horton-vården - Klusterhuvudvärksföreningen (Sweden), Arvsfonden-funded 2016-2018 patient care-mapping project output.

73. Swedish national headache quality register annual report 2024 - Clinician-run register, not patient-collected.

74. Hodepine Norge — national CH patient pathway proposal, February 2026 - Norwegian patient association (~6,500 members) health-policy advocacy document.

75. Hovedpineforeningen merger coverage and Danmarks Patientforening for Hovedpineramte - Danish patient association landscape, 2025.

76. O.U.C.H. Italia / GRAPPOLAIUTO and CRISS/Università Politecnica delle Marche report on Italian CH patient associations - Confirms patient-founded, patient-governed status since 2002 under president Luca Bonventre.

77. Censis survey of Italian cluster headache patients - Institutional (not patient-run) Italian CH survey, n=129.

78. DeSC claims-linked cluster headache survey, Journal of Headache and Pain 2022;23:70 - Clinician/insurer-generated Japanese CH data, n=21,480.

79. Baidu Baike: 丛集性头痛 - Representative Chinese-language reference material found; no patient-run organisation or dataset located.

80. ACRA/CRAES patient study on suicidal ideation in cluster headache - Spanish patient association (CRAES/ACRA) recruitment partnership with Fundación del Cerebro.

81. DMT use in Cluster Headache: Interim Analysis of an International Survey (S23.003) - Schindler E, Lenaburg K, Wold R. Neurology 2026;106, conference abstract co-authored with Clusterbusters founder Bob Wold.

82. Leighton et al. 2025 psychedelic case series and LSD Phase 2 trial in chronic cluster headache, NCT05477459 - Extension of the psychedelics pipeline beyond psilocybin/BOL-148.

83. BetterLife Pharma investor presentation, July 2026 - BETR-001 (6R:9R stereoisomer) preclinical status, IND expected Q1 2027.

84. Researchers to trial psilocybin as hope for “screwdriver behind the eye” cluster headaches - The George Institute, PEACE trial scale and AUD $800,000 funding detail.

85. Cluster headache trial got funded in Australia - Dr Faraidoon Haghdoost, 30 September 2025 - states recruitment had not yet started, expected H2 2026.

86. Dr Faraidoon Haghdoost LinkedIn post, 17 March 2026 - Advertises a webinar on the “upcoming” PEACE trial.

87. Patient perspectives on research gaps in cluster headache - Haghdoost et al., Headache 2026, DOI 10.1111/head.70031, co-authored with Bob Wold, n=202 patient survey.

88. Real-life treatment of cluster headache in a tertiary headache center – Danish Cluster Headache Survey and PubMed search confirming no CH-specific energy drink/caffeine intervention trials exist as of August 2026.

89. ClinicalTrials.gov kudzu/Pueraria listings - Confirms zero headache trials among ~50 registered kudzu/Pueraria studies as of August 2026.